From Coverage to Care: A People’s Report on Healthcare in New York State presents an analysis of data collected from 2,409 New York adults, using the Healthcare Rights and Access Survey, an outreach and data collection tool developed by the CNYH. It was adapted in October 2016, from a survey used by the Vermont Workers’ Center, Put People First Pennsylvania, and the Southern Maine Workers’ Center, with assistance from the National Economic and Social Rights Initiative. An additional question about access to home care was added in February, 2018, to reflect input from disability rights activists and advocates for the aging about the financial challenges of accessing long term support services.
Survey respondents were recruited using a convenience sampling method. The CNYH posted the Health Rights and Access Survey online in fall 2016. In the summer and fall of 2017, volunteers were trained in person and via online trainings on how to use the survey to guide conversations in their communities. Survey results were collected in-person, over the phone, and online between August, 2017, and January, 2019. The in-person survey was administered by members of the CNYH to respondents in their homes, neighborhoods, workplaces, and community organizations. Over half of respondents (52.5%) were engaged through one-on-one conversations, and the remainder were engaged through an online survey. Less than 1% of responses were collected in 2016 and the remainder were collected in 2017-2019.
From the original English version, the survey was translated into Arabic, Chinese (Mandarin/Cantonese), French, Korean, Somali, Spanish, Swahili, Urdu, and Vietnamese.
The racial and ethnic composition of the respondents was similar to the demographics of New York state: 65% of respondents identified as White, 12% Black, 7% Hispanic, 6% Asian, and 1% Native American or Indigenous. 7% of survey respondents did not provide a race/ethnicity. These racial/categories are not mutually exclusive.
Respondents described their gender as 64% identified as women, 30% as men, and 2% as transgender or other. 5% of respondents did not indicate a gender.
Survey respondents indicated their ages as under 19 (1%), 20-29 (12%), 30-39 (17%), 40-49 (11%), 50-64 (24%), 65 and older (24%). 12% of respondents did not indicate their age.
The geographic distribution of the respondents was: 9% Western NY, 5% Southern Tier, 31% New York City, 6% Mid-Hudson/Eastern NY, 9% Lower Hudson Valley, 7% Long Island, 11% Finger Lakes, 12% Central NY, 1% Adirondacks, and 9% did not provide their county of residence.